Research Article
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Reliability and construct validity of the Turkish adaptation of the Assessment of Life Habits for children and adolescents with cerebral palsy

Year 2021, Volume: 34 Issue: 2, 101 - 111, 31.05.2021

Ayse Numanoglu Akbas Ozge Cankaya Kubra Seyhan Bıyık Sefa Unes Merve Tuncdemır Umut Ece Arslan Lutfiye Hilal Ozcebe Mintaze Kerem Gunel

https://doi.org/10.5472/marumj.943118
Cited By: 4

Abstract

Objectives: The Assessment of Life Habits (LIFE-H) is a well-known questionnaire used to evaluate participation. The aim of this
study was to determine the reliability and validity of the Turkish version of the LIFE-H in children with Cerebral Palsy (CP).
Patients and Methods: The study included 450 children with CP between the ages of 2-18 years old. The internal consistency and testretest
reliability of the LIFE-H were calculated. The construct validity of the LIFE-H was determined with the Pediatric Evaluation of
Disability Inventory (PEDI) domains and Pediatric Outcome Data Collection Instrument (PODCI) subscales.
Results: The mean age of the children was 8.37±5.13 years (42.4% female, 57.6% male). The internal consistency of the LIFE-H was
determined to be acceptable for all categories (Cronbach alpha:0.794-0.999). The test-retest reliability values were found to be of good
to excellent reliability (ICC:0.804-0.999). The correlation between the LIFE-H total scores, PODCI subscales and PEDI domains was
determined as acceptable (rho between 0.538-0.894) except for the Pain/Comfort, Happiness subscales of the PODCI (rho:0.240 –
0.479).
Conclusions: It was determined that the Turkish LIFE-H had acceptable internal consistency, good test-retest reliability and
satisfactory construct validity. Turkish LIFE-H is an appropriate tool to assess the participation of children and adolescents with CP.

Keywords

Cerebral palsy Children Participation Reliability Validity

References

  • World Health Organization. International Classification of Functioning, Disability, and Health: Children & Youth Version: ICF-CY. Geneva: World Health Organization Press; 2007.
  • Björck-Åkesson E, Wilder J, Granlund M, et al. The International Classification of Functioning, Disability and Health and the version for children and youth as a tool in child habilitation/early childhood intervention–feasibility and usefulness as a common language and frame of reference for practice. Disabil Rehabil 2010;32(sup1):125-38. doi: 10.3109/09638.288.2010.516787
  • Sandberg A, Eriksson A. Children’s participation in preschool– on the conditions of the adults? Preschool staff ’s concepts of children’s participation in preschool everyday life. Early Child Dev Care 2010;180:619-31. doi:10.1080/030.044.30802181759
  • Law M, King G, Petrenchik T, Kertoy M, Anaby D. The assessment of preschool children’s participation: internal consistency and construct validity. Phys Occup Ther Pediatr 2012;32:272-87. doi:10.3109/01942.638.2012.662584
  • Günel MK, Türker D, Ozal C, Kara OK. Physical management of children with cerebral palsy. In: Svraka E. ed. Cerebral Palsy-Challenges for the Future. Croatia: IntechOpen, 2014: 29-74. doi: 10.5772/57505
  • Chiarello LA, Palisano RJ, Orlin MN, Chang H-J, Begnoche D, An M. Understanding participation of preschool-age children with cerebral palsy. J Early Interv. 2012;34:3-19. doi: 10.1177/105.381.5112443988
  • Resch C, Van Kruijsbergen M, Ketelaar M, et al. Assessing participation of children with acquired brain injury and cerebral palsy: a systematic review of measurement properties. Dev Med Child Neurol 2020;62:434-44. doi: 10.1111/ dmcn.14465
  • SSchwellnus H, King G, Baldwin P, Keenan S, Hartman LR. A solution-focused coaching intervention with children and youth with cerebral palsy to achieve participation-oriented goals. Phys Occup Ther Pediatr 2020;40:423-440. doi: 10.1080/01942.638.2020.1711841
  • Türkiye İstatistik Kurumu [Turkish Statistical Institute]. Doğum İstatistikleri [Birth Statistics]. [cited 2020 26.06]. Available from: file:///C:/Users/AY%C5%9EE/Desktop/ Haber_Bulteni.pdf
  • Serdaroǧlu A, Cansu A, Özkan S, Tezcan S. Prevalence of cerebral palsy in Turkish children between the ages of 2 and 16 years. Dev Med Child Neurol 2006;48:413-6. doi:10.1111/j.1469-8749.2006.tb01288.x
  • Law M, Finkelman S, Hurley P, et al. Participation of children with physical disabilities: relationships with diagnosis, physical function, and demographic variables. Scand J Occup Ther. 2004;11:156-62. doi: 10.1080/110.381.20410020755
  • Bjornson KF, Zhou C, Stevenson RD, Christakis D. Relation of stride activity and participation in mobility-based life habits among children with cerebral palsy. Arch Phys Med Rehabil 2014:360-8. doi:10.1016/j.apmr.2013.10.022
  • Palisano R, Rosenbaum P, Bartlett D, Livingston M. Gross motor function classification system expanded and revised (gmfcs-e & r). Ontario:McMaster University Press, 2007.
  • El Ö, Baydar M, Berk H, Peker Ö, Koşay C, Demiral Y.Interobserver reliability of the Turkish version of the expanded and revised gross motor function classification system. Disabil Rehabil 2012;34:1030-3 doi:10.3109/09638.28 8.2011.632466
  • Eliasson AC, Krumlinde Sundholm L, Rösblad B, et al. The Manual Ability Classification System (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Child Neurol. 2006;48:549- 54. doi: 10.1111/j.1469-8749.2006.tb01313.x
  • Akpinar P, Tezel CG, Eliasson AC, Icagasioglu A. Reliability and cross-cultural validation of the Turkish version of Manual Ability Classification System (MACS) for children with cerebral palsy. Disabil Rehabil 2010;32:1910-6.17. doi:10.3109/096.382.81003763796
  • Hidecker MJC, Paneth N, Rosenbaum PL, et al. Developing and validating the Communication Function Classification System for individuals with cerebral palsy. Dev Med Child Neurol 2011;53:704-10. doi: 10.1111/j.1469- 8749.2011.03996.x
  • Sellers D, Mandy A, Pennington L, Hankins M, Morris C. Development and reliability of a system to classify the eating and drinking ability of people with cerebral palsy. Dev Med Child Neurol 2014;56:245-51. doi: 10.1111/dmcn.12352 2
  • Noreau L, Desrosiers J, Robichaud L, Fougeyrollas P, Rochette A, Viscogliosi C. Measuring social participation: reliability of the LIFE-H in older adults with disabilities. Disabil Rehabil 2004;26:346-52. doi:10.1080/096.382.8041000.165.8649
  • Noreau L, Fougeyrollas P, Vincent C. The LIFE-H: Assessment of the quality of social participation. Technol Disabil 2002;14:113-8. doi: 10.3233/TAD-2002-14306
  • Desrosiers J, Noreau L, Robichaud L, Fougeyrollas P, Rochette A, Viscogliosi C.Validity of the assessment of life habits in older adults. J Rehabil Med 2004;36:177-82. doi 10.1080/165.019.70410027485
  • Goh H-T, Ramachandram K, Ahmad-Fauzi A, Subamanian P.Test-Retest Reliability and Validity of the Malay Version Life Habits Assessment (LIFE-H 3.1) to measure social participation in adults with physical disabilities. J Geriatr Phys Ther 2016;39:132-9. doi: 10.1519/JPT.000.000.0000000064
  • Noreau L, Lepage C, Boissiere L, et al. Measuring participation in children with disabilities using the Assessment of Life Habits. Dev Med Child Neurol. 2007;49(9):666-671. DOI: doi. org/10.1111/j.1469-8749.2007.00666.x
  • Eremenco SL, Cella D, Arnold BJ. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Eval Health Prof. 2005;28(2):212–32. DOI: 10.1177/016.327.8705275342
  • Daltroy LH, Liang MH, Fossel AH, Goldberg MJ. The POSNA pediatric musculoskeletal functional health questionnaire: report on reliability, validity, and sensitivity to change. J Pediatr Orthop. 1998;18(5):561-571. DOI: 10.1097/00004.694.199809000-00001
  • Keskin Dilbay N, Kerem Günel M, Aktan T. Pediatrik Veri Toplama Aracının (PVTA) Türkçe versiyonunun serebral palsili bireylerde geçerlik ve güvenirliği. [Reliability and validity of Turkish version of Pediatric Outcome Data Collection Instrument (PODCI) for people with cerebral palsy]. Fizyoterapi Rehabilitasyon. 2013;24(1):118-126.
  • Haley SM. Pediatric Evaluation of Disability Inventory (PEDI): Development, standardization and administration manual. Boston: PEDI Resarch Group; 1992.
  • Erkin G, Elhan AlH, Aybay C, Sirzai H, Ozel S. Validity and reliability of the Turkish translation of the Pediatric Evaluation of Disability Inventory (PEDI). Disabil. Rehabil.2007;29(16):1271-1279. DOI:10.1080/096.382.80600964307
  • Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika. 1951;16(3):297-334. DOI: 10.1007/ BF02310555
  • Nunnally JC. Psychometric theory 3E. Michigan: Tata McGraw-Hill Education, 1994.
  • Koo TK, Li MYJ. A guideline of selecting and reporting intraclass correlation coefficients for reliability research. J Chiropr Med 2016;15:155-63. doi: 10.1016/j.jcm.2016.02.012
  • Cohen J. Statistical Power Analysis for the Behavioral Sciences. 2nd edn. Hillsdale, Lawrence Erlbaum Associates, 1988. doi: 10.4324/978.020.3771587
  • Mortazavi SN, Rezaei M, Rassafiani M, Tabatabaei M, Mirzakhani N. Validity and Reliability of Persian Version of LIFE Habits Assessment for children with cerebral palsy aged between 5 and 13 Years Old. Arch Rehabil 2014;14:115-23.
  • Alghamdi MS, Chiarello LA, Palisano RJ, McCoy SW. Understanding participation of children with cerebral palsy in family and recreational activities. Res Dev Disabil 2017;69:96- 104. doi: doi.org/10.1016/j.ridd.2017.07.006.
  • Mei, Cristina, et al. Activities and participation of children with cerebral palsy: parent perspectives. Disabil Rehabil 2015; 37: 2164-73. doi:10.3109/09638.288.2014.999164.

Year 2021, Volume: 34 Issue: 2, 101 - 111, 31.05.2021

Ayse Numanoglu Akbas Ozge Cankaya Kubra Seyhan Bıyık Sefa Unes Merve Tuncdemır Umut Ece Arslan Lutfiye Hilal Ozcebe Mintaze Kerem Gunel

https://doi.org/10.5472/marumj.943118
Cited By: 4

Abstract

References

  • World Health Organization. International Classification of Functioning, Disability, and Health: Children & Youth Version: ICF-CY. Geneva: World Health Organization Press; 2007.
  • Björck-Åkesson E, Wilder J, Granlund M, et al. The International Classification of Functioning, Disability and Health and the version for children and youth as a tool in child habilitation/early childhood intervention–feasibility and usefulness as a common language and frame of reference for practice. Disabil Rehabil 2010;32(sup1):125-38. doi: 10.3109/09638.288.2010.516787
  • Sandberg A, Eriksson A. Children’s participation in preschool– on the conditions of the adults? Preschool staff ’s concepts of children’s participation in preschool everyday life. Early Child Dev Care 2010;180:619-31. doi:10.1080/030.044.30802181759
  • Law M, King G, Petrenchik T, Kertoy M, Anaby D. The assessment of preschool children’s participation: internal consistency and construct validity. Phys Occup Ther Pediatr 2012;32:272-87. doi:10.3109/01942.638.2012.662584
  • Günel MK, Türker D, Ozal C, Kara OK. Physical management of children with cerebral palsy. In: Svraka E. ed. Cerebral Palsy-Challenges for the Future. Croatia: IntechOpen, 2014: 29-74. doi: 10.5772/57505
  • Chiarello LA, Palisano RJ, Orlin MN, Chang H-J, Begnoche D, An M. Understanding participation of preschool-age children with cerebral palsy. J Early Interv. 2012;34:3-19. doi: 10.1177/105.381.5112443988
  • Resch C, Van Kruijsbergen M, Ketelaar M, et al. Assessing participation of children with acquired brain injury and cerebral palsy: a systematic review of measurement properties. Dev Med Child Neurol 2020;62:434-44. doi: 10.1111/ dmcn.14465
  • SSchwellnus H, King G, Baldwin P, Keenan S, Hartman LR. A solution-focused coaching intervention with children and youth with cerebral palsy to achieve participation-oriented goals. Phys Occup Ther Pediatr 2020;40:423-440. doi: 10.1080/01942.638.2020.1711841
  • Türkiye İstatistik Kurumu [Turkish Statistical Institute]. Doğum İstatistikleri [Birth Statistics]. [cited 2020 26.06]. Available from: file:///C:/Users/AY%C5%9EE/Desktop/ Haber_Bulteni.pdf
  • Serdaroǧlu A, Cansu A, Özkan S, Tezcan S. Prevalence of cerebral palsy in Turkish children between the ages of 2 and 16 years. Dev Med Child Neurol 2006;48:413-6. doi:10.1111/j.1469-8749.2006.tb01288.x
  • Law M, Finkelman S, Hurley P, et al. Participation of children with physical disabilities: relationships with diagnosis, physical function, and demographic variables. Scand J Occup Ther. 2004;11:156-62. doi: 10.1080/110.381.20410020755
  • Bjornson KF, Zhou C, Stevenson RD, Christakis D. Relation of stride activity and participation in mobility-based life habits among children with cerebral palsy. Arch Phys Med Rehabil 2014:360-8. doi:10.1016/j.apmr.2013.10.022
  • Palisano R, Rosenbaum P, Bartlett D, Livingston M. Gross motor function classification system expanded and revised (gmfcs-e & r). Ontario:McMaster University Press, 2007.
  • El Ö, Baydar M, Berk H, Peker Ö, Koşay C, Demiral Y.Interobserver reliability of the Turkish version of the expanded and revised gross motor function classification system. Disabil Rehabil 2012;34:1030-3 doi:10.3109/09638.28 8.2011.632466
  • Eliasson AC, Krumlinde Sundholm L, Rösblad B, et al. The Manual Ability Classification System (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Child Neurol. 2006;48:549- 54. doi: 10.1111/j.1469-8749.2006.tb01313.x
  • Akpinar P, Tezel CG, Eliasson AC, Icagasioglu A. Reliability and cross-cultural validation of the Turkish version of Manual Ability Classification System (MACS) for children with cerebral palsy. Disabil Rehabil 2010;32:1910-6.17. doi:10.3109/096.382.81003763796
  • Hidecker MJC, Paneth N, Rosenbaum PL, et al. Developing and validating the Communication Function Classification System for individuals with cerebral palsy. Dev Med Child Neurol 2011;53:704-10. doi: 10.1111/j.1469- 8749.2011.03996.x
  • Sellers D, Mandy A, Pennington L, Hankins M, Morris C. Development and reliability of a system to classify the eating and drinking ability of people with cerebral palsy. Dev Med Child Neurol 2014;56:245-51. doi: 10.1111/dmcn.12352 2
  • Noreau L, Desrosiers J, Robichaud L, Fougeyrollas P, Rochette A, Viscogliosi C. Measuring social participation: reliability of the LIFE-H in older adults with disabilities. Disabil Rehabil 2004;26:346-52. doi:10.1080/096.382.8041000.165.8649
  • Noreau L, Fougeyrollas P, Vincent C. The LIFE-H: Assessment of the quality of social participation. Technol Disabil 2002;14:113-8. doi: 10.3233/TAD-2002-14306
  • Desrosiers J, Noreau L, Robichaud L, Fougeyrollas P, Rochette A, Viscogliosi C.Validity of the assessment of life habits in older adults. J Rehabil Med 2004;36:177-82. doi 10.1080/165.019.70410027485
  • Goh H-T, Ramachandram K, Ahmad-Fauzi A, Subamanian P.Test-Retest Reliability and Validity of the Malay Version Life Habits Assessment (LIFE-H 3.1) to measure social participation in adults with physical disabilities. J Geriatr Phys Ther 2016;39:132-9. doi: 10.1519/JPT.000.000.0000000064
  • Noreau L, Lepage C, Boissiere L, et al. Measuring participation in children with disabilities using the Assessment of Life Habits. Dev Med Child Neurol. 2007;49(9):666-671. DOI: doi. org/10.1111/j.1469-8749.2007.00666.x
  • Eremenco SL, Cella D, Arnold BJ. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Eval Health Prof. 2005;28(2):212–32. DOI: 10.1177/016.327.8705275342
  • Daltroy LH, Liang MH, Fossel AH, Goldberg MJ. The POSNA pediatric musculoskeletal functional health questionnaire: report on reliability, validity, and sensitivity to change. J Pediatr Orthop. 1998;18(5):561-571. DOI: 10.1097/00004.694.199809000-00001
  • Keskin Dilbay N, Kerem Günel M, Aktan T. Pediatrik Veri Toplama Aracının (PVTA) Türkçe versiyonunun serebral palsili bireylerde geçerlik ve güvenirliği. [Reliability and validity of Turkish version of Pediatric Outcome Data Collection Instrument (PODCI) for people with cerebral palsy]. Fizyoterapi Rehabilitasyon. 2013;24(1):118-126.
  • Haley SM. Pediatric Evaluation of Disability Inventory (PEDI): Development, standardization and administration manual. Boston: PEDI Resarch Group; 1992.
  • Erkin G, Elhan AlH, Aybay C, Sirzai H, Ozel S. Validity and reliability of the Turkish translation of the Pediatric Evaluation of Disability Inventory (PEDI). Disabil. Rehabil.2007;29(16):1271-1279. DOI:10.1080/096.382.80600964307
  • Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika. 1951;16(3):297-334. DOI: 10.1007/ BF02310555
  • Nunnally JC. Psychometric theory 3E. Michigan: Tata McGraw-Hill Education, 1994.
  • Koo TK, Li MYJ. A guideline of selecting and reporting intraclass correlation coefficients for reliability research. J Chiropr Med 2016;15:155-63. doi: 10.1016/j.jcm.2016.02.012
  • Cohen J. Statistical Power Analysis for the Behavioral Sciences. 2nd edn. Hillsdale, Lawrence Erlbaum Associates, 1988. doi: 10.4324/978.020.3771587
  • Mortazavi SN, Rezaei M, Rassafiani M, Tabatabaei M, Mirzakhani N. Validity and Reliability of Persian Version of LIFE Habits Assessment for children with cerebral palsy aged between 5 and 13 Years Old. Arch Rehabil 2014;14:115-23.
  • Alghamdi MS, Chiarello LA, Palisano RJ, McCoy SW. Understanding participation of children with cerebral palsy in family and recreational activities. Res Dev Disabil 2017;69:96- 104. doi: doi.org/10.1016/j.ridd.2017.07.006.
  • Mei, Cristina, et al. Activities and participation of children with cerebral palsy: parent perspectives. Disabil Rehabil 2015; 37: 2164-73. doi:10.3109/09638.288.2014.999164.
There are 35 citations in total.

Details

Primary Language English
Subjects Clinical Sciences
Journal Section Original Articles
Authors

Ayse Numanoglu Akbas 0000-0001-9296-8972

Ozge Cankaya This is me 0000-0002-6639-217X

Kubra Seyhan Bıyık This is me 0000-0001-7943-4255

Sefa Unes This is me 0000-0002-0130-8440

Merve Tuncdemır This is me 0000-0003-3453-6893

Umut Ece Arslan This is me 0000-0002-0884-8079

Lutfiye Hilal Ozcebe This is me 0000-0002-0918-8519

Mintaze Kerem Gunel This is me 0000-0003-4942-5272

Publication Date May 31, 2021
Published in Issue Year 2021 Volume: 34 Issue: 2

Cite

APA Numanoglu Akbas, A., Cankaya, O., Seyhan Bıyık, K., Unes, S., et al. (2021). Reliability and construct validity of the Turkish adaptation of the Assessment of Life Habits for children and adolescents with cerebral palsy. Marmara Medical Journal, 34(2), 101-111. https://doi.org/10.5472/marumj.943118
AMA Numanoglu Akbas A, Cankaya O, Seyhan Bıyık K, Unes S, Tuncdemır M, Arslan UE, Ozcebe LH, Kerem Gunel M. Reliability and construct validity of the Turkish adaptation of the Assessment of Life Habits for children and adolescents with cerebral palsy. Marmara Med J. May 2021;34(2):101-111. doi:10.5472/marumj.943118
Chicago Numanoglu Akbas, Ayse, Ozge Cankaya, Kubra Seyhan Bıyık, Sefa Unes, Merve Tuncdemır, Umut Ece Arslan, Lutfiye Hilal Ozcebe, and Mintaze Kerem Gunel. “Reliability and Construct Validity of the Turkish Adaptation of the Assessment of Life Habits for Children and Adolescents With Cerebral Palsy”. Marmara Medical Journal 34, no. 2 (May 2021): 101-11. https://doi.org/10.5472/marumj.943118.
EndNote Numanoglu Akbas A, Cankaya O, Seyhan Bıyık K, Unes S, Tuncdemır M, Arslan UE, Ozcebe LH, Kerem Gunel M (May 1, 2021) Reliability and construct validity of the Turkish adaptation of the Assessment of Life Habits for children and adolescents with cerebral palsy. Marmara Medical Journal 34 2 101–111.
IEEE A. Numanoglu Akbas, “Reliability and construct validity of the Turkish adaptation of the Assessment of Life Habits for children and adolescents with cerebral palsy”, Marmara Med J, vol. 34, no. 2, pp. 101–111, 2021, doi: 10.5472/marumj.943118.
ISNAD Numanoglu Akbas, Ayse et al. “Reliability and Construct Validity of the Turkish Adaptation of the Assessment of Life Habits for Children and Adolescents With Cerebral Palsy”. Marmara Medical Journal 34/2 (May 2021), 101-111. https://doi.org/10.5472/marumj.943118.
JAMA Numanoglu Akbas A, Cankaya O, Seyhan Bıyık K, Unes S, Tuncdemır M, Arslan UE, Ozcebe LH, Kerem Gunel M. Reliability and construct validity of the Turkish adaptation of the Assessment of Life Habits for children and adolescents with cerebral palsy. Marmara Med J. 2021;34:101–111.
MLA Numanoglu Akbas, Ayse et al. “Reliability and Construct Validity of the Turkish Adaptation of the Assessment of Life Habits for Children and Adolescents With Cerebral Palsy”. Marmara Medical Journal, vol. 34, no. 2, 2021, pp. 101-1, doi:10.5472/marumj.943118.
Vancouver Numanoglu Akbas A, Cankaya O, Seyhan Bıyık K, Unes S, Tuncdemır M, Arslan UE, Ozcebe LH, Kerem Gunel M. Reliability and construct validity of the Turkish adaptation of the Assessment of Life Habits for children and adolescents with cerebral palsy. Marmara Med J. 2021;34(2):101-1.

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