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The Effect of Having a Sibling Diagnosed with Cancer on the Perception of Family: Projective Evaluation of Healthy Siblings’ Pictures

Yıl 2023, Cilt: 6 Sayı: 1, 14 - 25, 17.04.2023
https://doi.org/10.38108/ouhcd.1030375

Öz

Objective: The aim of this study was to examine the family perception through a psychological drawing test in healthy children with siblings diagnosed with cancer.
Methods: This descriptive study, using qualitative data collection and evaluation methods, was conducted on 20 healthy children whose siblings were diagnosed with cancer and who were treated in the pediatric clinics of a university hospital in Turkey. Data were gathered with Descriptive Characteristics of Family Members Form, Kinetic Family Drawing Test and Semi-Structured Interview Form.
Results: In most of the paintings, the mother was the first to be drawn as the most cherished and desired family member. The energy of the movement was negative in most of the drawings. According to projective analysis, the majority of healthy siblings had a perception of isolation in the family.
Conclusion: Healthy children having siblings diagnosed as cancer were found to have negative family perceptions. They had negative perceptions, especially about their position/role in the family.

Kaynakça

  • Alba-Suarez J, Davidson SL, Priebe C, Patel P, Greenspahn E, Boucher L, Rodríguez EM. (2021). Patient and sibling adjustment to pediatric cancer: the roles of parental relationship adjustment and depressive symptoms. Journal of Psychosocial Oncology, 39(5), 613-628. https://doi.org/10.1080/ 07347332.2020.1819932
  • Alderfer MA, Long KA, Lown A, Marsland AL Ostrowski NL, Hock JM, Eving LJ. (2010). Psychosocial adjustment of siblings of children with cancer: A systematic review. Psycho-Oncology, 19, 789-805. https://doi.org/10.1002/pon.1638
  • Arakelyan S, Maciver D, Rush R, O'hare A, Forsyth K. (2019). Family factors associated with participation of children with disabilities: A systematic review. Developmental Medicine & Child Neurology, 61(5), 514-522. https://doi.org/10.1111/dmcn.14133
  • Aslan ÖM, Üstün E. (2013). Kinetik aile çizim testinin stil ve hareket boyutları. International Journal of Social Science, 6(4), 599-614.
  • Bahcıvan-Saydam R. (2004). Children drawing in clinical evaluation. Reflection Journal of Psychopathology and Projective Tests, 1(1-2), 111-24.
  • Burns RC, Kaufman S. (1970). Kinetic Family Drawings (KFD): An Introduction to Understanding Children Through Kinetic Drawings. Oxford, England: Brunner/Mazel.
  • Çankırılı A. (2011). Çocuk R esimlerinin Dili. Zafer Press Release, s. 46-298.
  • DiLeo JH. (2013). Interpreting Children's Drawings. Routledge, s. 178.
  • Eilertsen MEB, Lövgren M, Wallin AE, Kreicbergs U. (2018). Cancer-bereaved siblings' positive and negative memories and experiences of illness and death: A nationwide follow-up. Palliative & Supportive Care, 16(4), 406-413. https://doi.org/ 10.1017/S1478951517000529
  • Erker C, Yan K, Zhang L, Bingen K, Flynn KE, Panepinto J. (2018). Impact of pediatric cancer on family relationships. Cancer Medicine, 7(5), 1680-1688. https://doi.org/10.1002/cam4.1393
  • Gan LL, Lum A, Wakefield CE, Nandakumar B, Fardell J E. (2017). School experiences of siblings of children with chronic illness: a systematic literature review. Journal of Pediatric Nursing, 33, 23-32. https://doi.org/10.1016/j.pedn.2016.11.007
  • Guggemos A, Juen F, Engelmann L, Diesselhorst V, Henze G, Di Gallo A. (2015). Siblings of children with cancer—the price they pay to function. Supportive Care in Cancer, 23(7), 1837-1839. https://doi.org/10.1007/s00520-015-2716-7
  • Hall SA, Rossetti Z. (2018). The roles of adult siblings in the lives of people with severe intellectual and developmental disabilities. Journal of Applied Research Intellectual Disabilities, 31, 423-34.
  • Halmatov S. (2020). Çocuk Resimleri Analizi ve Psikolojik Resim Testleri. Pegem Akademi Publishing, 6th edition, Ankara, 4-69.
  • Jones B, Currin-Mcculloch J, Pelletier W, Sardi-Brown V, Brown P, Wiener L. (2018). Psychosocial standards of care for children with cancer and their families: a national survey of pediatric oncology social workers. Social Work in Health Care, 57(4), 221-249. https://doi.org/10.1080/00981389.2018. 1441212
  • Kahraman Ö, Karadayı N. (2015). Children with disabled brothers views of experience with brothers. Hacettepe University Faculty of Health Sciences Journal, 1(2), 390-408. https://dergipark.org.tr/tr/ download/article-file/88876
  • Karakavak G, Çırak Y. (2006). Feelings of the mothers’ having chronically ill children. Inonu University Journal of the Faculty of Education, 7(12), 95-112. http://www.manevisosyalhizmet.com/wpcontent/uploads/2010/ 03/kronik_hastalikli_cocugu_olan_annelerin_yasadigi_duygular.pdf
  • Knecht C, Hellmers C, Metzing S. (2015). The perspective of siblings of children with chronic illness: A literature review. Journal of Pediatric Nursing, 30, 102-16. https://doi.org/10.1016/j.pedn. 2014.10.010
  • Labay L E, Walco GA. (2004). Brief Report: Empathy and Psychological Adjustment in Siblings of Children with Cancer. Journal of Pediatric Psychology, 29(4), 309–14. https://doi.org/10.1093/jpepsy/jsh032
  • Long KA, Pariseau EM, Muriel AC, Chu A, Kazak AE., Alderfer MA. (2018). Development of a psychosocial risk screener for siblings of children with cancer: Incorporating the perspectives of parents. Journal of Pediatric Psychology, 43(6), 693-701. https://doi.org/ 10.1093/jpepsy/jsy021
  • Long, KA, Lehmann V, Gerhardt CA, Carpenter AL, Marsland AL, Alderfer MA. (2018). Psychosocial functioning and risk factors among siblings of children with cancer: An updated systematic review. Psycho‐oncology, 27(6), 1467-1479. https://doi.org/ 10.1002/pon.4669
  • Malchiodi CA, Yurtbay T. (2005). Understanding Childrens' Drawings. Epsilon, 163-250.
  • Marques G, Araújo B, Sá L. (2018). The impact of cancer on healthy siblings. Revista Brasileira De Enfermagem, 71(4), 1992-1997. http://dx.doi.org/ 10.1590/0034-7167-2016-0449
  • McGrath P, Paton MA, Huff N. (2005). Beginning treatment for pediatric acute myeloid leukemia: The family connection. Issues in Comprehensive Pediatric Nursing, 28(2), 97-114. https://doi.org/ 10.1080/01460860590950881
  • Moghaddasi J, Taleghani F, Moafi A, Malekian A, Keshvari M, Ilkhani M. (2018). Family interactions in childhood leukemia: an exploratory descriptive study. Supportive Care in Cancer, 26(12), 4161-4168. https://doi.org/10.1007/s00520-018-4289-8
  • Murray J. (1998). The lived experience of childhood cancer: One sibling's perspective. Issues in Comprehensive Pediatric Nursing, 21(4), 217-227. https://doi.org/10.1080/014608698265429
  • Nolbris MJ, Enskär K, Hellström A. (2007). Experience of siblings of children treated for cancer. European Journalof Oncology Nursing, 11, 106-12. https://doi.org/10.1016/j.ejon.2006.10.002
  • Sarı HY, Ardahan E, Öztornacı BÖ. (2016). Systematic reviews about child abuse and neglect in last 10 years. TAF Preventive Medicine Bulletin, 15 (6), 501-511. https://doi.org/10.5455/pmb.1-1453795052
  • Siden H, Steele R. (2015). Charting the territory: Children and families living with progressive life-threatening conditions. Paediatrics & Child Health, 20, 139-44. https://doi.org/10.1093/pch/20.3.139
  • Siminghalam M, Aubi K, Hajian A, Alibakhshi H. (2018). The quality of life of siblings of children with severe developmental disabilities children. Iranian Rehabilitation Journal, 16 (3), 233-238. http://irj.uswr.ac.ir/browse.php?a_id=514&sid=1&slc_lang=en&html=1
  • Sloper P. (2000). Experiences and support needs of siblings of children with cancer. Health Social Care in The Community, 8(5), 298-306. https://doi.org/ 10.1046/ j.1365-2524.2000.00254.x
  • Tasker SL, Stonebridge GG. (2016). Siblings, you matter: Exploring the needs of adolescent siblings of children and youth with cancer. Journal of Pediatric Nursing, 31(6), 712-722. https://doi.org/10.1016/j.pedn. 2016.06.005
  • Turner-Sack AM, Menna R, Setchell SR, Maan C, Cataudella D. (2016). Psychological functioning, post-traumatic growth, and coping in parents and siblings of adolescent cancer survivors. In Oncology Nursing Forum, 43(1): 48-56. https://doi.org/ 10.1188/16.ONF.48-56
  • Toft T, Alfonsson S, Hovén E, Carlsson T. (2019). Feeling excluded and not having anyone to talk to: Qualitative study of interpersonal relationships following a cancer diagnosis in a sibling. European Journal of Oncology Nursing, 42, 76-81. https://doi.org/10.1016/j.ejon.2019.07.010
  • Van Schoors M, De Mol J, Laeremans N, Verhofstadt LL, Goubert L, Van Parys H. (2019). Siblings’ experiences of everyday life in a family where one child is diagnosed with blood cancer: a qualitative study. Journal of Pediatric Oncology Nursing, 36(2), 131-142. https://doi.org/10.1177%2F10434542188 18067
  • Van Warmerdam J, Sutradhar R, Kurdyak P, Lau C, Pole JD, Nathan PC, Gupta S. (2020). Long-term mental health outcomes in mothers and siblings of children with cancer: A population-based, matched cohort study. Journal of Clinical Oncology, 38(1), 51-62. https://doi.org/10.1200/JCO.19.01382
  • Ward B. (2016). Sibling experiences: Living with young persons with autism spectrum disorders. Pediatric Nursing, 42 (2), 69-76.
  • Wijnberg-Williams BJ, Kamps WA, Klip C, Hoekstra-Weebers JE. (2006). Psychological distress and the impact of social support on fathers and mothers of pediatric cancer patients: Long-term prospective results. Journal of Pediatric Psychology, 31(8), 785–792. https://doi.org/10.1093/jpepsy/jsj087
  • Woodgate RL. (2006). Siblings’ experiences with childhood cancer: A different way of being in the family. Cancer Nursing, 29(5), 406-414.
  • Woodgate RL, Tailor K, Yanofsky R, Vanan MI. (2016). Childhood brain cancer and its psychosocial impact on survivors and their parents: A qualitative thematic synthesis. European Journal of Oncology Nursing, 20, 140-149. https://doi.org/10.1016/j.ejon.2015.07.004
  • Yang HC, Mu PF, Sheng CC, Chen YW, Hung GY. (2016). A systematic review of the experiences of siblings of children with cancer. Cancer Nursing, 39(3), E12-E21. https://doi.org/10.1097/NCC.0000 000000000258
  • Zegaczewski T, Chang K, Coddington J, Berg A. (2016). Factors related to healthy siblings’ psychosocial adjustment to children with cancer: An integrative review. Journal of Pediatric Oncology Nursing, 33(3), 218-227. https://doi.org/10.1177%2F10434542156 00 426

Kanser Tanısı Alan Bir Kardeşe Sahip Olmanın Aile Algısı Üzerine Etkisi: Sağlıklı Kardeşlerin Resimlerinin Projektif Değerlendirilmesi

Yıl 2023, Cilt: 6 Sayı: 1, 14 - 25, 17.04.2023
https://doi.org/10.38108/ouhcd.1030375

Öz

Amaç: Bu çalışmanın amacı, kardeşi kanser tanısı almış sağlıklı çocuklarda aile algısının psikolojik çizim testi ile incelenmesidir.
Yöntem: Nitel veri toplama ve değerlendirme yöntemlerinin kullanıldığı bu tanımlayıcı araştırma, Türkiye'de bir üniversite hastanesinin çocuk kliniklerinde tedavi gören, kardeşi kanser tanısı almış sağlıklı 20 çocuk üzerinde yapıldı. Veriler Aile Bireylerinin Tanımlayıcı Özellikleri Formu, Kinetik Aile Çizim Testi ve Yarı Yapılandırılmış Görüşme Formu ile toplanmıştır.
Bulgular: Resimlerin çoğunda anne en önemsenen ve arzulanan aile üyesi olarak ilk çizilen kişiydi. Çizimlerin çoğunda hareketin enerjisi negatifti. Projektif analize göre sağlıklı kardeşlerin çoğunluğunun ailede izolasyon algısı vardı.
Sonuç: Kardeşi kanser tanısı almış sağlıklı çocukların aile algılarının olumsuz olduğu saptanmıştır. Özellikle aile içindeki konumları/rolleri ile ilgili olumsuz algıları vardı.

Kaynakça

  • Alba-Suarez J, Davidson SL, Priebe C, Patel P, Greenspahn E, Boucher L, Rodríguez EM. (2021). Patient and sibling adjustment to pediatric cancer: the roles of parental relationship adjustment and depressive symptoms. Journal of Psychosocial Oncology, 39(5), 613-628. https://doi.org/10.1080/ 07347332.2020.1819932
  • Alderfer MA, Long KA, Lown A, Marsland AL Ostrowski NL, Hock JM, Eving LJ. (2010). Psychosocial adjustment of siblings of children with cancer: A systematic review. Psycho-Oncology, 19, 789-805. https://doi.org/10.1002/pon.1638
  • Arakelyan S, Maciver D, Rush R, O'hare A, Forsyth K. (2019). Family factors associated with participation of children with disabilities: A systematic review. Developmental Medicine & Child Neurology, 61(5), 514-522. https://doi.org/10.1111/dmcn.14133
  • Aslan ÖM, Üstün E. (2013). Kinetik aile çizim testinin stil ve hareket boyutları. International Journal of Social Science, 6(4), 599-614.
  • Bahcıvan-Saydam R. (2004). Children drawing in clinical evaluation. Reflection Journal of Psychopathology and Projective Tests, 1(1-2), 111-24.
  • Burns RC, Kaufman S. (1970). Kinetic Family Drawings (KFD): An Introduction to Understanding Children Through Kinetic Drawings. Oxford, England: Brunner/Mazel.
  • Çankırılı A. (2011). Çocuk R esimlerinin Dili. Zafer Press Release, s. 46-298.
  • DiLeo JH. (2013). Interpreting Children's Drawings. Routledge, s. 178.
  • Eilertsen MEB, Lövgren M, Wallin AE, Kreicbergs U. (2018). Cancer-bereaved siblings' positive and negative memories and experiences of illness and death: A nationwide follow-up. Palliative & Supportive Care, 16(4), 406-413. https://doi.org/ 10.1017/S1478951517000529
  • Erker C, Yan K, Zhang L, Bingen K, Flynn KE, Panepinto J. (2018). Impact of pediatric cancer on family relationships. Cancer Medicine, 7(5), 1680-1688. https://doi.org/10.1002/cam4.1393
  • Gan LL, Lum A, Wakefield CE, Nandakumar B, Fardell J E. (2017). School experiences of siblings of children with chronic illness: a systematic literature review. Journal of Pediatric Nursing, 33, 23-32. https://doi.org/10.1016/j.pedn.2016.11.007
  • Guggemos A, Juen F, Engelmann L, Diesselhorst V, Henze G, Di Gallo A. (2015). Siblings of children with cancer—the price they pay to function. Supportive Care in Cancer, 23(7), 1837-1839. https://doi.org/10.1007/s00520-015-2716-7
  • Hall SA, Rossetti Z. (2018). The roles of adult siblings in the lives of people with severe intellectual and developmental disabilities. Journal of Applied Research Intellectual Disabilities, 31, 423-34.
  • Halmatov S. (2020). Çocuk Resimleri Analizi ve Psikolojik Resim Testleri. Pegem Akademi Publishing, 6th edition, Ankara, 4-69.
  • Jones B, Currin-Mcculloch J, Pelletier W, Sardi-Brown V, Brown P, Wiener L. (2018). Psychosocial standards of care for children with cancer and their families: a national survey of pediatric oncology social workers. Social Work in Health Care, 57(4), 221-249. https://doi.org/10.1080/00981389.2018. 1441212
  • Kahraman Ö, Karadayı N. (2015). Children with disabled brothers views of experience with brothers. Hacettepe University Faculty of Health Sciences Journal, 1(2), 390-408. https://dergipark.org.tr/tr/ download/article-file/88876
  • Karakavak G, Çırak Y. (2006). Feelings of the mothers’ having chronically ill children. Inonu University Journal of the Faculty of Education, 7(12), 95-112. http://www.manevisosyalhizmet.com/wpcontent/uploads/2010/ 03/kronik_hastalikli_cocugu_olan_annelerin_yasadigi_duygular.pdf
  • Knecht C, Hellmers C, Metzing S. (2015). The perspective of siblings of children with chronic illness: A literature review. Journal of Pediatric Nursing, 30, 102-16. https://doi.org/10.1016/j.pedn. 2014.10.010
  • Labay L E, Walco GA. (2004). Brief Report: Empathy and Psychological Adjustment in Siblings of Children with Cancer. Journal of Pediatric Psychology, 29(4), 309–14. https://doi.org/10.1093/jpepsy/jsh032
  • Long KA, Pariseau EM, Muriel AC, Chu A, Kazak AE., Alderfer MA. (2018). Development of a psychosocial risk screener for siblings of children with cancer: Incorporating the perspectives of parents. Journal of Pediatric Psychology, 43(6), 693-701. https://doi.org/ 10.1093/jpepsy/jsy021
  • Long, KA, Lehmann V, Gerhardt CA, Carpenter AL, Marsland AL, Alderfer MA. (2018). Psychosocial functioning and risk factors among siblings of children with cancer: An updated systematic review. Psycho‐oncology, 27(6), 1467-1479. https://doi.org/ 10.1002/pon.4669
  • Malchiodi CA, Yurtbay T. (2005). Understanding Childrens' Drawings. Epsilon, 163-250.
  • Marques G, Araújo B, Sá L. (2018). The impact of cancer on healthy siblings. Revista Brasileira De Enfermagem, 71(4), 1992-1997. http://dx.doi.org/ 10.1590/0034-7167-2016-0449
  • McGrath P, Paton MA, Huff N. (2005). Beginning treatment for pediatric acute myeloid leukemia: The family connection. Issues in Comprehensive Pediatric Nursing, 28(2), 97-114. https://doi.org/ 10.1080/01460860590950881
  • Moghaddasi J, Taleghani F, Moafi A, Malekian A, Keshvari M, Ilkhani M. (2018). Family interactions in childhood leukemia: an exploratory descriptive study. Supportive Care in Cancer, 26(12), 4161-4168. https://doi.org/10.1007/s00520-018-4289-8
  • Murray J. (1998). The lived experience of childhood cancer: One sibling's perspective. Issues in Comprehensive Pediatric Nursing, 21(4), 217-227. https://doi.org/10.1080/014608698265429
  • Nolbris MJ, Enskär K, Hellström A. (2007). Experience of siblings of children treated for cancer. European Journalof Oncology Nursing, 11, 106-12. https://doi.org/10.1016/j.ejon.2006.10.002
  • Sarı HY, Ardahan E, Öztornacı BÖ. (2016). Systematic reviews about child abuse and neglect in last 10 years. TAF Preventive Medicine Bulletin, 15 (6), 501-511. https://doi.org/10.5455/pmb.1-1453795052
  • Siden H, Steele R. (2015). Charting the territory: Children and families living with progressive life-threatening conditions. Paediatrics & Child Health, 20, 139-44. https://doi.org/10.1093/pch/20.3.139
  • Siminghalam M, Aubi K, Hajian A, Alibakhshi H. (2018). The quality of life of siblings of children with severe developmental disabilities children. Iranian Rehabilitation Journal, 16 (3), 233-238. http://irj.uswr.ac.ir/browse.php?a_id=514&sid=1&slc_lang=en&html=1
  • Sloper P. (2000). Experiences and support needs of siblings of children with cancer. Health Social Care in The Community, 8(5), 298-306. https://doi.org/ 10.1046/ j.1365-2524.2000.00254.x
  • Tasker SL, Stonebridge GG. (2016). Siblings, you matter: Exploring the needs of adolescent siblings of children and youth with cancer. Journal of Pediatric Nursing, 31(6), 712-722. https://doi.org/10.1016/j.pedn. 2016.06.005
  • Turner-Sack AM, Menna R, Setchell SR, Maan C, Cataudella D. (2016). Psychological functioning, post-traumatic growth, and coping in parents and siblings of adolescent cancer survivors. In Oncology Nursing Forum, 43(1): 48-56. https://doi.org/ 10.1188/16.ONF.48-56
  • Toft T, Alfonsson S, Hovén E, Carlsson T. (2019). Feeling excluded and not having anyone to talk to: Qualitative study of interpersonal relationships following a cancer diagnosis in a sibling. European Journal of Oncology Nursing, 42, 76-81. https://doi.org/10.1016/j.ejon.2019.07.010
  • Van Schoors M, De Mol J, Laeremans N, Verhofstadt LL, Goubert L, Van Parys H. (2019). Siblings’ experiences of everyday life in a family where one child is diagnosed with blood cancer: a qualitative study. Journal of Pediatric Oncology Nursing, 36(2), 131-142. https://doi.org/10.1177%2F10434542188 18067
  • Van Warmerdam J, Sutradhar R, Kurdyak P, Lau C, Pole JD, Nathan PC, Gupta S. (2020). Long-term mental health outcomes in mothers and siblings of children with cancer: A population-based, matched cohort study. Journal of Clinical Oncology, 38(1), 51-62. https://doi.org/10.1200/JCO.19.01382
  • Ward B. (2016). Sibling experiences: Living with young persons with autism spectrum disorders. Pediatric Nursing, 42 (2), 69-76.
  • Wijnberg-Williams BJ, Kamps WA, Klip C, Hoekstra-Weebers JE. (2006). Psychological distress and the impact of social support on fathers and mothers of pediatric cancer patients: Long-term prospective results. Journal of Pediatric Psychology, 31(8), 785–792. https://doi.org/10.1093/jpepsy/jsj087
  • Woodgate RL. (2006). Siblings’ experiences with childhood cancer: A different way of being in the family. Cancer Nursing, 29(5), 406-414.
  • Woodgate RL, Tailor K, Yanofsky R, Vanan MI. (2016). Childhood brain cancer and its psychosocial impact on survivors and their parents: A qualitative thematic synthesis. European Journal of Oncology Nursing, 20, 140-149. https://doi.org/10.1016/j.ejon.2015.07.004
  • Yang HC, Mu PF, Sheng CC, Chen YW, Hung GY. (2016). A systematic review of the experiences of siblings of children with cancer. Cancer Nursing, 39(3), E12-E21. https://doi.org/10.1097/NCC.0000 000000000258
  • Zegaczewski T, Chang K, Coddington J, Berg A. (2016). Factors related to healthy siblings’ psychosocial adjustment to children with cancer: An integrative review. Journal of Pediatric Oncology Nursing, 33(3), 218-227. https://doi.org/10.1177%2F10434542156 00 426
Toplam 42 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Konular Hemşirelik
Bölüm Araştırma
Yazarlar

Songül Aşık 0000-0001-5521-8830

Oya Sevcan Orak 0000-0002-7499-5077

Erken Görünüm Tarihi 17 Nisan 2023
Yayımlanma Tarihi 17 Nisan 2023
Gönderilme Tarihi 30 Kasım 2021
Yayımlandığı Sayı Yıl 2023 Cilt: 6 Sayı: 1

Kaynak Göster

APA Aşık, S., & Orak, O. S. (2023). The Effect of Having a Sibling Diagnosed with Cancer on the Perception of Family: Projective Evaluation of Healthy Siblings’ Pictures. Ordu Üniversitesi Hemşirelik Çalışmaları Dergisi, 6(1), 14-25. https://doi.org/10.38108/ouhcd.1030375