EN
The Evaluation of the Burden and Burnout Levels of the Caregivers of the Inpatients in Palliative Care
Abstract
The study was conducted to evaluate the care burden and burnout levels of caregivers for patients hospitalized in palliative care. This descriptive study was conducted with 76 caregivers who were hospitalized in the palliative care services of a university and state hospital between 02.12.2019 and 02.06.2022 in Turkey. After obtaining the permissions of the ethics committee and the institution, the data were collected with the Descriptive Characteristics Form, Palliative Performance Scale, Caregivers Burden Inventory, and Maslach Burnout Inventory. The total score of the Caregivers Burden Inventory was 50.31±15.37, sub-dimensions of time-dependency burden, developmental burden, physical burden, social burden, and emotional burden scores were 18.30±3.23, 10.94±6.03, 13.54±5.99, 4.09±4.68, and 3.42±3.89, respectively. The Maslach Burnout Inventory sub-dimensions were emotional exhaustion, depersonalization, and personal accomplishment, with mean scores of 24.78±10.33, 11.59±4.20, and 28.64±5.67, respectively. The mean Palliative Performance Scale score of the patients was 32.76±16.86. As the burden of caregivers increased, so did their exhaustion scores. Caregivers had moderate care burdens, high time dependency and physical burdens, high emotional exhaustion, and low personal accomplishment burnout. All patients who were cared for were bedridden. The presence of incontinence in the patient affected the time dependency burden of the caregivers, and the presence of chronic disease in the caregiver and living with the patient also affected the caregivers' emotional exhaustion. These results show that studies must be conducted to develop multidisciplinary interventions to reduce caregivers’ care burden and burnout.
Keywords
Ethical Statement
Non-Interventional Clinical Research Ethics Committee of a university (Sivas Cumhuriyet University, Decision No: 2019-11/19). Written permission was obtained from the Rectorate of the University (93596471-774.99-E.32863) and the Chief Physician of Sivas Numune Hospital (76728045-799-2557), where the implementation was made. The study was conducted following the principles of the Declaration of Helsinki.
Thanks
We would like to thank the informal caregivers who participated in this study.
References
- 1. WHO. Palliative Care https://www.who.int/news-room/fact-sheets/detail/palliative-care
- 2. The Worldwide Hospice Palliative Care Alliance (WHPCA). Global Atlas of Palliative Care, 2020, 2. Edt.
- 3. Family Caregiver Alliance. © 2016 Family Caregiver Alliance
- 4. CDC. Caregiving for Family and Friends — A Public Health Issue
- 5. Hudson P, Payne S. Family caregivers and palliative care: current status and agenda for the future. J Palliat Med. 2011; 14(7):864-869.
- 6. Gérain P, Zech E. Informal Caregiver Burnout? Development of a Theoretical Framework to Understand the Impact of Caregiving. Front Psychol. 2019;10:1748.
- 7. Perpiñá-Galvañ J, Orts-Beneito N, Fernández-Alcántara M, García-Sanjuán S, García-Caro MP, Cabañero-Martínez MJ. Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients. Int J Environ Res Public Health. 2019;16(23):4806.
- 8. Hategan A, Bourgeois JA, Cheng T, Young J. Caregiver Burnout. In: Geriatric Psychiatry Study Guide: Mastering the Competencies, Springer International Publishing, 1st ed. 2018.
Details
Primary Language
English
Subjects
Palliative Care
Journal Section
Research Article
Publication Date
September 30, 2023
Submission Date
September 1, 2023
Acceptance Date
September 20, 2023
Published in Issue
Year 2023 Volume: 45 Number: 3
AMA
1.Tok Yıldız F, Avcı O, Yıldız İ. The Evaluation of the Burden and Burnout Levels of the Caregivers of the Inpatients in Palliative Care. CMJ. 2023;45(3):91-102. doi:10.7197/cmj.1353837
Cited By
Quality of life of elderly cardiac patients with multimorbidity and burnout among their caregivers
The Egyptian Journal of Internal Medicine
https://doi.org/10.1186/s43162-024-00384-8